Ep141: Narcolepsy: A Different Way of Living with Narcolepsy with Sheila Digout

OVERVIEW

Today’s episode is in honor of the World Narcolepsy Day happening this September 22nd. To celebrate this event, we invited Sheila Digout, the Wake Up Narcolepsy Canada Group support leader.

Sheila was diagnosed with Narcolepsy type 1 at the age of 45, after decades of symptoms. She had to give up her career too soon because of her disorder. She also experienced embarrassing treatment from friends and workmates.

Sadly, Sheila is not the only one out there. Several people who are going through the same disorder are feeling shame, fear, loneliness, and grief. Sheila’s hope is that, through research, education, and advocacy, the road to diagnosis will become less daunting for others with the same sickness.

In this episode, we are going to discover why most narcoleptic people never share their disorder with anyone. How they are treated by the people around them and what they need to go through to battle narcolepsy.

You hate to see people not living their best life because they have narcolepsy. It's just a different way of living. - Sheila Digout

Listen in and learn from the expert!

If you like what you are listening to, you can leave a review and donate, we appreciate your support!

Support our Podcast: https://www.buymeacoffee.com/dryishan
Leave us a Rating here.

If you are having difficulty falling or staying asleep, check Dr. Yishan’s Sleep Improvement Course here!

WHAT WILL WE LEARN

02:36 What it feels like working in healthcare while dealing with your own health conditions
08:01 Understanding cataplexy and the different emotions associated to it
13:00 The kind of support that a narcoleptic person expect to receive compared to the treatment she received
17:30 An example of who do you tell, when do you tell, do you tell experience
23:00 What hallucination looks like when associated with narcolepsy
28:00 What you need to give up because of narcolepsy
31:00 There are ways to make things better and live your life while having narcolepsy
35:20 Why every sleep clinic should have a psychologist
39:00 A different way of living

Are you so sleepy that you cannot focus? Are you tired of getting through the day drinking coffee? Are you worried how your poor sleep may impact your health? Checkout Dr. Yishan Xu’s Insomnia Treatment Course!

Connect with Dr. Yishan